Services and Programmes

 

Cerebral Palsy Greece is still the only NGO in Greece that offers organized programmes to such a wide range of people with severe physical disabilities(cp) of all ages.

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Subcategories

  • Medical Service
  • Therapeutic Services

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  • Educational Services
  • Adult Club
  • Respite Home
  • Additional Programmes
  • Cerebral palsy

    Cerebral palsy (CP) describes a group of permanent disorders of the development of movement and posture, causing activity limitation, that are attributed to non-progressive disturbances that occurred in the developing fetal or infant brain. The motor disorders of CP are often accompanied by disturbances of sensation, perception, cognition, communication, behaviour, by epilepsy and by secondary musculoskeletal problems. (Rosenbaum, Peter et. Al. 2006

    The prevalence of CP shows a variable rate, ranging from 1,5 to 3 per 1000 live births. Every year 10.000 children in the European Union are diagnosed with CP.
    The ginger group, from Projects Coordination Team in Ankara Provincial Directorate for National Education, Turkey, behind the present project wished to investigate how parents and teachers of children with CP coped with this task. An internet search was carried on and the related research and literature were investigated. Meanwhile, discussion groups and face-to-face interviews were carried out as a preparation for the project. 20 teachers working at schools with CP pupils participated in the discussion groups once a week for 6 weeks. In addition, face to face interviews were conducted with 5 teachers and 15 parents at a school which mainly has pupils with Cerebral Palsy. According to these; it showed that parents as well as teachers lacked knowledge and competencies to assist the children at home and at school. Besides, they lacked information on services and possibilities of assistance. Parents also expressed the need to share their feelings, hopes and fears for their children as well as the need for leisure time and privacy. Furthermore, research illustrates that the Quality of Life (QoL) of children with CP in terms of participation, social, attitudinal and physical environments is poor and parental stress index is often high. It should be stressed, however, that the factor QoL is primarily contingent on the environment in which a CP child is raised and thereby involves access to services and resources at local and national level. Therefore, QoL is also directly linked to national and social infrastructure, which differs from country to country. In some EU countries, this infrastructure requires further development in order to support the CP population more adequately and effectively. The conclusion is that parents and teachers of children with cerebral palsy need support in many ways taking into account the adequacy of their environment.
    As a result of these analyses, CP-PACK project was developed by communication, co-ordination and collaboration of 7 various institutions from 6 different countries in order to support parents and teachers of children with cerebral palsy in the scope of their needs.